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It's been a wonderful year and you are
our sweet little princess. You have grown and changed so much and the
love we have just grows with you. You had to have your second operation
now that you are stronger and even though it's scary we know you are in
good hands. This is part 2 of your story baby girl.
Tues 03-27-07 We
took you to Children's Hospital so Dr. Permut could see you. He said you
looked great and would be ready for your operation on the 19th. Dr. Kim
chose the date but Dr. Permut is your very gifted surgeon. He explained
that they would use a valve made from cow to replace the one that is not
working in your heart. This would fix the problem you have and the procedures
for the future would be easy. All they would need to do is go in and clean
your valve from time to time. He explained that the operation would take
about 4-5 hours and they would use the by pass machine to stop your heart.
They did this last time too. See they need your heart to be still so they
can work without hurting you. There is minor risk and is scary however we
know you will be ok. You are after all in God's hands. Tues
04-17-07 We went to Children's Hospital to
have your blood work and to check your sats and EKG as well as having an
Echo. They use the ultra sound machine to look at your heart, by the time
you read this you will know what that is. :) Everything went just fine and
the nurses thought you were great. Thurs
04-19-07 6am is when we
arrived at the hospital. You will be having your operation at 9am but they
want us there early so they can check you in and give you Anesthesia. We
went back to a small room with you where we sat and played for a little
while. The doctors came and took you back to prepare you and mommy and
daddy went to sit with Gammy, Grumpa, and Grandma. The nurse called us to
let us know what steps were being taken so we would know you were o.k. She
called at 9am to let us know they were starting the operation and then to
let us know when you went on and off the by pass machine. 5 hours later
you were transferred to ICU and we were able to see you around 1pm. You looked so
good even with all your tubes you were peaceful and resting. We were
scared but you came back to us and that is what we prayed for. Now you
will heal and later we will come back for check ups and cleaning of your
new valve. Fri 04-20-07 Today
your chest tube was removed, that made you mad of course but you calmed
down and are breathing very nice on your own. You have a little fever so
they are running tests to make sure you're o.k. Everything is going just
fine and the ICU nurses think you are just the cutest little thing. They
have been looking at the pictures we brought of you and they also signed
your book. We are so blessed to have the staff at Children's. They care
very much about you. Sat 04-21-07 They
removed another line today and you are resting peaceful. We have been
coming home at nights so that we can have the house ready for you. The ICU
is too busy for us to rest and the staff promised to let us know if you
needed us. You are happy and ready to be moved to the main floor now. Sun
04-22-07 You are still in ICU just waiting for a room on the floor.
We just love you so much and you are so strong. You are my hero little
girl after everything you have been through you just get stronger and
stronger. You ate some chicken for me too. :) Mon 04-23-07
We finally moved to the main floor! This is pretty nice, we have
our own room so it's almost like being home! You have some pain of course
so you are taking medicine for that but you want to roll over and play so
bad. You tried but decided it was a little too soon. Tues
04-24-07 You are resting very well and you don't want to do much
but of course you just had a major operation. You eat a little and you
drink a little. You have been trying juice and whole milk. It's so
wonderful that you are doing so much, even sitting in a highchair. :) The
nurses love you so much. Gammy will stay the night with you tonight
because mommy is not feeling well. Wed 04-25-07 Gammy
said you had a great night, you ate and drank and rocked with her. In fact
they said you could come home. I called daddy right away and we went to
pick you up! :) By the time we got over there you were ready to go. Gammy
came home with us so she could help mommy since you will need to be picked
up by your bottom for a while. It's called scooping, just like last time
only you are bigger now. You have follow up appointments with Dr. Kim and
Dr. Mouser. Thurs
04-26-07 You are healing so very well and you seem so happy to be
home. You impress me so much my angel, I just can not get over how well
you are sitting and playing. You just want to go go, see we adults are not
as strong. Fri 04-27-07 Today you rolled
onto your tummy and stayed there, it didn't seem to hurt you at all! WOW!
You just get stronger with each day. We
love you so much little one and you never fail to amaze those you touch.
There are so many people who think of you with prayers and warmth. You may
never meet them face to face but know you are very loved angel. We thank
everyone who helped you and we thank God for bringing you to us and for
helping you through your operations. There is much to do in the future but
you will come through and you will grow into a remarkable young lady. |